Morbus Hodgkin Forum von Axel

Dear Julsi, I did finish 4 cycles of chemo and am waiting for results from PET, on 30th I will start radiation therapy. I did not see Dr.Lamm, as there was always other Dr., Dr.Prager. He is also nice. Dr.Drach did say I have to have RT, so what can I do, that can not be so terribly heavy as chemo I...

Dear Alina, All my infusions were delayed for one week(I had already 6), and that is not so rare. My Leukos in two weeks are always too low, in three weeks- they are Ok, and I get Chemo. It is dengarous to get chemo with low leukocytes, also we all want it to be done as soon as possible... You shoul...

Hi Dear Julsi, Did you have already investigations, I pray that everything is going well for you. You, as well as I, had a very early stage of disease so, you do not have to worry very much. I wanted to ask you already long time, why did not you get Radiation therapy(beschtrallung)? Kindest regards ...

Hello everybody, I got wonderful support from forum, for what I want to thank Axel as well as all members of forum. Now when I am a bit more relaxed, I decided to introduce myself, also want to appologize if it is quite long. My name is Nino(39y), I am from Georgia(Tbilisi), have very beautiful larg...

Dear people, I just finished two cycles of ABVD(4 infusions), ultrasound from yesterday did not find any enlarged nodes anymore, I wanted to share this news with you, it was for me always great hope to hear from others about their success. Nobody knows what the life will bring, but today I feel very...

Hello Zebra, It is so good that you did find this forum, it is very helpfull, it did help me a lot. I will try to write about my experience for you, sorry it is in english. I just finished my second zycle, had 4 infusions(ABVD). Still 4 of them are ahead of me. Infusion did last from 2,5-to3hours. M...

Thanks Marc, I will ask,
I assumed that no answer is also answer,
thank you
nino

Seems nobody uses alternative medicine, so maybe it is bad idea to think about it, in addition I have such acute pains on the side of infusion in my hand that I hardly can think about anything else. I got some cream prescribed today but pharmacies were already closede, tomorrow I will buy it. My hou...

Dear friends, I did have the infusion again after three weeks from previous one, and have difficult time as always in the begining, but what scares me more is that they planned next therapy after three weeks, assuming that my blood needs so long time, I did not find any studies about this topic in I...

My dear people, I think I did make the first round, Had some problems, bur most important is - I am through :D. Waiting for next infusion, honestly, with fear, but at the same time, I understand I do not have any other choise. Hope the next is a little easier... At the moment I am again Nino, but wi...

My dear people, today I have got my second infusion, whole week before I was ill, got some virus, I am coughing(husten) a lot, they said that blood is Ok and it does not matter if I cough or not. At the moment I am very tired as last time, hope the days go fast, and some short, but better time, befo...

Thank you, people, you are so great, I hope it will grow in a week. Of caurse I am feeling now well and am enjoying it, already went to 3 theatre plays and looked at all new films I missed in this time of stress and visited 5 different restaurants, also I can not eat much, I enjoy living as normal. ...

My dear friends,

Today some doctor called me from Hospital and told that I will not have chemo done tomorow, because of leucocites are too low. Is it too bad?


alles gute
nino

Dear Daisy, I have MH and did start ABVD(I am not familiar with beacopp), I will have 4 cycles. Will try to tell you what I did develope and what helped. first infusion was not bad, I did get some stomatitis, but after I used NaHCO3 deluted in water and later when I had pains- in mouth because of st...

My dear friends, Today I am nearly as my usual me. I want to tell all who start chemo, first days are difficult and you should do it through, by taking good care of all appairing symptoms, but then it becomes better and better, every day you gain the strength and you are back to normal, do not be pe...